Hsuan accompanied me and my mom to our first post-CAR-T check-up together. We were in and out fairly quickly this time. My backside has been hurting for days, likely a side effect of the Neupogen shot I received upon discharge. My counts haven’t yet “bottomed out,” as they continue to drop, but I remain pretty careful about wearing a mask everywhere, washing my hands, etc.
I have a bit of a break until the next appointment, so the next time I see my oncologist on Wednesday after the PET scan, we will find out if CAR-T has been working. Family friends will be visiting then, too, which honestly adds to the stress. Whatever happens, I want to face it with just me, Hsuan, and my parents. After all, no one else truly knows everything we have been through, and if we are lucky enough to experience much-needed relief and happiness that day, then it is our moment to experience together. Let’s pray that we can close this chapter at last, move on, and live life to the fullest.
It’s still a little hard to believe that instead of flying back to Taiwan in a couple days as in previous visits, Hsuan is staying for good. In fact, an incredible joy replaces that lingering sadness. We are in this together.